Ex-CBBC star, 28, battling terminal illness fears she might not live to see family after coronavirus lockdown
AN ex-CBBC star battling terminal illness fears that she might not live to see the end of the coronavirus crisis - and be reunited with her friends and family.
Chelsie Whibley, 28, suffers from the incurable disease cystic fibrosis - an inherited condition that causes sticky mucus to build up in the lungs and digestive system.
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“But on the other hand, I don’t know how much time I have and it breaks me knowing I can’t see them.
“I love them all so much and I just want to be with them because I know I don’t have long left.
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Dubbed the "ultimate cystic fibrosis cure drug", Trikafta is due to be available on the NHS as soon as next year.
But Chelsie’s doctors were in talks with drug company Vertex to let her have the drug now on compassionate grounds.
She said: “My physicians had been working hard to fight my corner but they’re not expecting to get any answers from them while this is going on.
“It’s soul-destroying. I know I haven’t got long left and I’m desperate for this drug to help extend my life.
“We have been begging them to help.
“I need the extra time to make up for all these days I’ll miss in lockdown.”
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