What is late infantile Batten disease, what are the symptoms of Ollie and Amelia Carroll’s condition and how is it treated?
Batten disease is a neurological disorder that occurs in children
LATE Infantile Batten Disease is a neurological disorder that occurs in children between the ages of 2 and 4 and is an early onset form of Batten Disease.
Here's everything you need to know about the disease, from the symptoms to the treatment.
What is Batten Disease and how common is it?
Batten disease is a disorder of the nervous system which results in death and typically begins in childhood.
(National Institute of Neurological Disorders and Stroke), the disorder will usually start to appear in children between the ages of 5 and 10, who may have been previously completely well.
There are many forms of the disease, but Late Infantile Batten Disease occurs begins between ages 2 and 4.
The first signs of the disease are are loss of muscle coordination and seizures. , this form progresses rapidly and ends in death between ages 8 and 12.
Lucy and Mike Carroll recently spoke about .
Their children, Ollie, six, and Amelia, four, both have the disease.
Every two weeks Ollie and Amelia, who need round-the-clock care, travel to Great Ormond Street in London for enzyme treatment.