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heartbroken family's cancer plea

Family demand change in cervical cancer screening laws as woman, 25, dies after disease developed undetected in her teens

Amber Rose Cliff died on Sunday after a battle with cancer that went undetected throughout her teenage years

A HEARTBROKEN family have demanded a change in cervical screening laws after a 25-year-old woman lost her cancer battle.

Amber Rose Cliff died on Sunday after a battle with cancer that went undetected throughout her teenage years.

 A heartbroken family have demanded cervical screening for under 18s after a 25-year-old lost her cancer battle
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A heartbroken family have demanded cervical screening for under 18s after a 25-year-old lost her cancer battleCredit: North News and Pictures
 Amber Cliff died on Sunday after her cervical cancer went undetected for years
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Amber Cliff died on Sunday after her cervical cancer went undetected for yearsCredit: North News and Pictures

The malignancy attacking her reproductive system remained undetected for at least three years as she was not given a screening.

Routine smear testing is only carried out from the age of 25 on the NHS, but Amber's devastated brother Josh is now demanding more flexibility for young women to be screened.

The 27-year-old says his sister began exhibiting worrying symptoms from the age of 18 and went to the doctors on a number of occasions.

 Amber began showing worrying symptoms from the age of 18 but was reportedly denied a smear test
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Amber began showing worrying symptoms from the age of 18 but was reportedly denied a smear testCredit: North News and Pictures

WHAT IS CERVICAL CANCER?

Described as a " silent killer", cervical cancer is where the disease starts in the neck of the womb - the cervix.
Around 3,000 new cases are diagnosed in the UK each year.
It is possible for women of all ages to develop the disease, but it mainly affects those who are sexually active and aged 30 to 45.
It is very rare in women under the age of 25.
In 2014, there were 3,224 new cases of the disease diagnosed in the UK, while 890 women lost their lives.
What causes the disease?
The human papillomavirus (HPV) is the most common cause of cervical cancer.
Two strains of HPV - HPV 16 and HPV 18 - are known to be responsible for 90 per cent of cases.
What are the symptoms?
Cervical cancer is known as a silent killer, because for most women there are no obvious signs, particularly during the early stages.
However, the most common sign is vaginal bleeding between your periods.
Other symptoms include:
- bleeding during or after sex
- bleeding after going through the menopause
Some women also notice:
- an unpleasant smelling vaginal discharge
- discomfort or pain during sex
Women experiencing any of these symptoms are advised to see their GP.

Despite asking for screening a number of times, he says his sister was never given one.

Amber and her family eventually took matters into their own hands, as they were convinced she needed to be examined.

Josh said: "We went for a private smear test whens he was about 21, three years after she'd first been to the doctors.

“It turned out that the cancerous tumour in her cervix had been growing for years.”

Amber started chemotherapy and radiotherapy and eventually had to have operations to remove parts of her reproductive system.

 

 Brother Josh is now campaigning to make screenings more readily available for teenagers on the NHS
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Brother Josh is now campaigning to make screenings more readily available for teenagers on the NHSCredit: ncjMedia
 The 25-year-old's malignancy went undetected for three years as she was not offered a screening
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The 25-year-old's malignancy went undetected for three years as she was not offered a screeningCredit: ncjMedia

But despite periods of recovery, the cancer eventually spread to her lymph nodes, lungs and throat.

Josh said: "She was angry. She felt let down."

Thousands of women are diagnosed with cervical cancer every year, according to Cancer Research UK, and it is very rare in women under the age of 25.

Most health experts agree routinely screening women younger than 25 would be ineffective.

But Josh, from Sunderland, believes Amber's experience proves smear tests for women under 18 need to be readily available in certain circumstances.

The determined brother has , which has now reached more than 20,000 signatures.

He said: “I want it to be called Amber’s Law.“Any female under 25 showing any problems with their reproductive system should have the option of a cervical screening.

“It shouldn’t be mandatory, but that option needs to be there.”

Amber was private about her illness, limiting the circle of people who knew what she was suffering to close friends and family.The Sunderland University business graduate and Gentoo housing officer hid it from those she knew on a daily basis.

CERVICAL CANCER SCREENING ON THE NHS

In England all women registered with a GP are invited for a smear test to screen for cervical cancer every three years from the age of 25 to 49 and every five years from 50 to 64.

Women over the age of 65 are only screened if they haven't had a smear test since the age of 50, or have had abnormal results.
The charity Jo's Cervical Cancer Trust estimates screening saves 5,000 lives each year.
What does the test detect?
Smear tests are not a test for cervical cancer.
It is a test to check the health of the cells of the cervix.
Most women will have normal results.
But, one in 20 will show abnormal changes.
This does not mean they have cancer, and in most cases these changes will not lead to cancer.
Some women will need to undergo a procedure to have the abnormal cells removed, to lower their future risk of cervical cancer.
Why are women not screened under the age of 25?
Cervical cancer in women under the age of 25 is very rare.
Each year around 65 of the 3,207 women diagnosed with the disease are under 25, according to Jo's Cervical Cancer Trust.
Screening has been shown to be less effective in younger women.
And, in the coming years as more teenage girls receive the HPV jab - which protects against HPV, the main cause of cervical cancer - the number of young women with the disease will likely reduce even further.

Josh said: “She didn’t want sympathy. She refused to have people feel sorry for her.

“It was hard for the family because we had to pretend everything was okay for her.”

Amber’s determination to live her life in spite of the disease was undimmed even when her health was in a desperate state, Josh said.

“The Saturday before she died, an ambulance had to take her to hospital because she was having breathing problems.

“But she stood up and got back out of it to go back in to the house and get her make-up bag.

 Amber, pictured with brother Josh, lost her battle on Sunday after her cancer spread to her lymph nodes
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Amber, pictured with brother Josh, lost her battle on Sunday after her cancer spread to her lymph nodesCredit: North News and Pictures

“Amber wouldn’t give up – she was always stubborn and it was the best thing she could have been.

“She refused to lie there and die. She was a fighter.”

Amid the grief, Josh says he is comforted by the fact he was able to spend one last Christmas with his sister.

He said: “We never even liked Christmas but we had a great one, the best we ever had. The last thing she ever bought was presents for my two children - her two godchildren.”

Commenting on the campaign, Dr Jana Witt, health information officer at Cancer Research UK, said screening young women before they reach 25 can “do more harm than good”.

 Routine smear testing is only carried out on people over the age of 25, and Amber's cancer started developing much earlier
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Routine smear testing is only carried out on people over the age of 25, and Amber's cancer started developing much earlierCredit: North News and Pictures
 The malignancy attacking Amber's reproductive system remained undetected for at least three year
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The malignancy attacking Amber's reproductive system remained undetected for at least three yearCredit: North News and Pictures

She said: “Cervical screening is for women who don’t have any symptoms and is an important way to prevent the disease from developing.

“Research has shown that, on balance, screening women under the age of 25 can do more harm than good.

“This is because cervical changes that screening detects in younger women tend to clear up by themselves and are less likely to develop into cancer, so screening may lead to unnecessary tests and treatment.

“Whatever your age or screening history, if you notice symptoms such as bleeding between periods, after sex, after the menopause, or any other unusual changes, it’s really important to contact your GP and get them checked out.”

To support the Amber’s Law campaign, .


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